From Nicole: My son Lucas was born on May 21, 2011 with Junctional Herlitz EB. He had big beautiful blue eyes and we instantly fell completely in love with our baby boy. Five weeks later, Lucas passed away in my arms. I miss my son more than words could ever say. But like Jonah, and all the other brave butterflies around the world, his story is helping to raise awareness for EB.
Read more about his story here.
The bear is valued at $15.
